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Rylie’s Smile dance party raises funds in Rehoboth

Rylie Maedler is making more news.

This time, it’s because the 10-year-old Rehoboth Elementary student recently hosted a second annual community fundraiser for her Rylie’s Smile Foundation at Nicola Pizza and brought in the bucks.

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From ‘Rylie’s Law’ to Rylie’s Smile

Rylie’s story was recently featured in the April issue of Delaware Beach Life.

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Rylie’s Law to become Law

DOVER — With the Thursday, June 11, passage of Rylie’s Law through the House, children suffering from various forms of seizures will soon have access to medicine that was previously reserved only for adults..

The House voted unanimously in favor of the bill with 40 yes and one absent.

Rylie’s Law, Senate Bill 90, is named after Rylie Maedler, a 9-year-old from Rehoboth Beach. It would allow Delaware children under the age of 18 to use medical marijuana-based oils to treat intractable epilepsy and dystonia.

Immediately following the vote, Speaker of the House Rep. Pete Schwartzkopf, D-Rehoboth Beach, thanked his fellow House members.

“This is very important to this little girl right here,” he said with Rylie standing proudly by his side.

The bill was introduced May 7 by Sen. Ernie Lopez, R-Lewes, and it sailed through the Senate by a unanimous 21-0 vote June 2.

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Rylie’s Smile: Tooth Pain and Puffy Face Leads to Aggressive Giant Cell Granuloma Diagnosis

Rylie started her foundation, Rylie’s Smile Foundation, to help other children who are battling for their lives with a rare disease or disorder.

She considers herself extremely fortunate and wants nothing more then to help other children still suffering more then her. Rylie’s journey started in 2103 with her teeth shifting. Her dentist had said she would need braces so we were not alarmed. We then noticed she was more tired then normal. She would also have dizzy spells and periods of nausea. Her eyes seemed puffy and slightly uneven. We took her to her allergist. She was dx’d with wheezing and reflux. We thought we’d found what was bothering her!

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Rylie’s Smile fundraiser at Nicola Pizza

Not even two years have passed since Rehoboth’s 9-year-old Rylie Maedler narrowly escaped a diagnosis of cancer, and she’s set out to help other children who weren’t so lucky.

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Rehoboth girl battles pediatric cancer

Last year, 8-year-old  Rylie Maedler learned she had an aggressive form of cancer.

The Rehoboth Elementary School student was minutes away from a spinal tap and the beginnings of chemotherapy when fate stepped in, and the procedure was called off.

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9-Year-Old Girl’s Illness Inspires Her to Start a Foundation

Watch this video about one 9-year-old girls’ illness inspired her to start her own foundation to give back to other sick kids.

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Our Mission

Our Mission

Our main goal, to gift children battling severe life threatening diseases and disorders their own iPod Touches so that they may have as much comfort and joy as possible during their treatments and hospital stays.   To read an excellent article and learn more about Rylie - Cape Gazette Article

Rylie's Shop

Rylie's Shop

We have come up with some fun merchandise that is of course endorsed by Rylie, as well as her Youth Committee and family...

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